5 Years a Diabetic, Where Did The Time Go? 


This week I celebrated my 5 year Diaversary.  I can’t believe it has already been five years.  I’d like to ask where did the time go, but I know exactly where it went.:

  • 1 visit to the ER. 
  • Over 9125 finger pokes.
  • Over 10,950 insulin injections/inhalations.
  • Hundreds of Jelly Belly Jelly Beans (my quick sugar of choice when treating a low BS)
  • 2 Research Studies.
  • Over 20 blood draws and endo appointments.
  • 5 glucose meters
  • 3 generations of Dexom Continuous Glucose monitors. 
  • 7 different insulins.
  • Over 350 followers on Instagram @cutthebsgirl.
  • Over 400 Likes on the Cut the BS Facebook Page.
  • Over 45 blog posts with over 2300 visits to the Cut The BS Blog. 
  • 1 5K run completed…slowly but complete! 
  • 4 JDRF OneWalks walked and one more on the way
  • Almost 50 walkers recruited.
  • $16,699.30 raised for T1D research from hundreds of donors!
  • 3 cruises.
  • 5 Wedding Anniversary Trips.
  • 10 Indycar races 
  • 1 Diabetes unConference.
  • 1 radio show.
  • A community of my peeps. 
  • Countless laughter.
  • Immense love.
  • So much pride.

I say “celebrate” because the last five years have truly been a gift.  Every single day has been a gift.  It’s been a gift to me.  It’s been a gift to my family. I hope it has been a gift to anyone my life and efforts have touched.

I’m so grateful to those before me that relentlessly raised funds and conducted research so that I can have these five years.  I’m so thankful that they didn’t give up on finding insulin.  It has been an absolute honor to benefit from better treatments and I am extremely hopeful for a cure.  I have to be.

I’m so stinkin excited for what the next 5 years have in store!

Cut the BS y’all! Much love.

How I Learned to Take Insulin Shots From ‘Always Sunny’


Did you see that episode of ‘It’s Always Sunny in Philadelphia’ when Mac decides to “cultivate mass” and ends up with Type 2 Diabetes?   Now please note that I am fully aware that type 2 diabetes doesn’t work that way nor does everyone find shows like ‘Always Sunny’ as funny as I do.   

I was still in my transition as a new person with Type One diabetes when I saw this episode.  Besides all the many ways this episode was inaccurate in how Mac handled life with diabetes as well as mishandling the tools involved with diabetes care, there was a scene that absolutely stood out to me.  

Mac and Dennis were sitting at a high top table at Paddy’s Pub talking about who knows what and eating chimichangas out of a garbage bag.  The table is stacked with food.  Mac with giant chimichanga in hand, without hesitation, jabs an insulin filled syringe into his bulging belly.  He then continues to eat and talk with his friend like nothing happened.  

At this point, I was still closing my eyes and my heart would sink into my tummy as I waited for my glucose number flash across the screen of my meter during checks.  I would also carefully select the spot of my next shot on my abdomen before I slowly stuck the needle in.  Well, duh, that would would hurt.  

What if I did it without hesitation? If Rob McElhenny, the actor who plays Mac, can plunge a syringe in his belly to get a laugh…then I can definitely do it to effing save my own life every day.  

My next scheduled shot was at around 10:00pm that evening.  “I’m gonna do it.” I thought to myself, determined.  I took out my Lanuts pen, screwed on my pen needle, cleaned my injection site, and jabbed.  I jabbed quickly and without hesitation.  Guess what?  It didn’t hurt.  I couldn’t believe it.  It was so quick in that I didn’t even notice the prick.  I pressed the button down, held it there for a few seconds, (I count to 8-it’s my favorite number) and removed it.  Success!

Who knew I would end up learning something about my diabetes care from dark comedy?  Who knew my sense of humor was sicker thank my pancreas and even more twisted than my sweet demeanor gives off? Who knew?  

I’ve been jabbing ever since.  Thanks Mac!  Cheers!


Rest In Sweet Peace Mary Tyler Moore

Mary Tyler Moore died today.  I knew I wanted to write something because she meant too much to me.  I couldn’t quite find the words so I began procrastinating by looking for images to use for this post.  Then I came across the quiz: Which “Mary Tyler Moore Show” character are you?  I already knew the answer, but I thought I’d enter my answers and get a confirmation from the gods at MeTV.com : I got Mary Richards.

 

No, I didn’t look like her.  No, I wasn’t an actress.  No, I wasn’t a trained dancer.  But so much of me can relate to the real Mary Richards – Mary Tyler Moore.  First of all, we both went to Immaculate Heart High School.  Yes, believe it or not, we both went to an all girl school and came out on the other side still smiling.

          

Next, Mary Tyler Moore provided me with role models that I wanted to be like when I grew up.  Through her role as Mary Richards and through the different shows produced by MTM Enterprises, her name and influence brought strong, articulate, intelligent, and funny female characters to life at a time that it just wasn’t common.  As a young woman in the 80’s, I tightly embraced the idea that I could be a TV producer or the mastermind behind a private investigating company like Remmington Steele.  Did I turn into any of those characters? No. But I knew I could if the desire struck.


Lastly, we were both diagnosed with Type 1 Diabetes (T1D) in our early thirties. She was 33 and I was 32.  It wasn’t only the fact that she was diagnosed at 33 that amazed me about her.  It was what she was able to accomplish after that diagnosis.  The work she has done with the JDRF and the commitment she gave to our cause is nothing short of great and it’s something I will forever appreciate.  


Her transparency and honesty with how she lived her life with diabetes is an  inspiration to me and it helps me to live my best life with Type 1 Diabetes.  I only hope that I can help others in the same way she helped me.  Every day I celebrate little victories where I feel like I can  twirl around the throw my hat in the air like times when my blood sugars are in check.

So thank you, Mary Tyler Moore. Thank you for being a pioneer in television, female empowerment, and living a long, full, and eventful life with diabetes.   I now have hope that I can live well into my 80s.  I have been inspired and empowered by you to continue doing my own share of the work in volunteerism, fundraising, and advocacy with JDRF.  I will keep your spirit alive by working to “turn the world on with my smile” and continue the legacy of encouragement you began decades ago.  

Indy 500: Charlie Kimball, Driver with T1D, Takes Green Flag with Diabetes Leaders Onboard

I know, the 500 was on Sunday, and what a great race it was!  I was working on this post prior to and during the 500 and so I’ll post it now.

Not sure if you guys saw this, but I accidentally came across this story when one of my friends posted that her name will be featured on Charlie Kimball’s Tresiba car for the 100th running of the Indianapolis 500.  The story talks about how Charlie would be running the 42 of Kyle Larson, a driver for Chip Ganassi in NASCAR.  The 42 signifies the 42 hours that Tresiba can last in your system after first use and so they will honor 42 leaders in the diabetes community by having them ride with him on that day.

The more imprtant part of this photo was not the back end where Charlie and Kyle are, but closer to the front wheels.
 

As I looked into the story further, I found more names of People with Diabetes that I have met in my relatively short tenure of having diabetes. Needless to say, I was excited and really confirms why I am such a fan of both Charlie Kimball and Novo Nordisk.   

The 42 names that adorned the side fin’s of Charlie’s Indycar include not only people with Diabetes, but organizations and people without diabetes who work tirelessly for our community.

Isn’t that just a sexy car???
 
I’ve actually met some of these people!!!
   

I then began to think of my own heroes in Diabetes.  The cool part is, some of the people on our lists are the same!  For the sake of Charlie’s Temporary Number Change for the 100th running of the Indy 500, here is my list of 42 heroes in my life with Diabetes:

  1. Ryan
  2. Elan
  3. Ella
  4. Arturo
  5. Liwayway
  6. Charlie
  7. JDRF
  8. The Diabetes Unconference
  9. Kimberly 
  10. Tony
  11. Cynthia
  12. Chris
  13. Adriana
  14. Ali
  15. Mike
  16. Stephen
  17. Palm Medical Group
  18. Palm Research Center
  19. Serena
  20. Samer
  21. Danielle
  22. Sara
  23. Alecia
  24. Heather
  25. ADA
  26. Kathleen
  27. The Diabetes Collective
  28. Christel
  29. Diabetes Hands Foundation
  30. Kerri
  31. Karen
  32. Anni
  33. Team Happy
  34. Sonia
  35. Marcy
  36. Norman
  37. Mary
  38. Novo Nordisk
  39. Susan
  40. Kathy
  41. Dexcom
  42. Team Cut The BS…I mean Blood Sugar.

Wow, I feel fortunate to have been able to come up with these names as quickly as I could.  Honestly, I could have probably kept naming people until I reached Charlie’s actual racing number (#83.). Everyday, I am thankful for these heroes. Whether these leaders have diabetes or not, these people/organizations encourage and inspire me to become my best self…a self with diabetes.

Playing with Hot Wheels after the 500 has become a thing for our family!

Who would be the names on your side fins?  Please share your heroes with us!

#Thankfulfor

  
Since the year started, I have been keeping this New Year’s resolution, that I would jot down something that I am thankful for everyday.  In previous years, I would have set up a spreadsheet for myself to fill in the blanks and measure my success, but not this year.  I have written my ‘Thankful For’s in one of two journals I keep, and sometimes, I’ve written them on a napkin and tossed it.  I’m going to be honest and say that I have fallen a few times in that I have not written something down everyday, but feel that I’ve built up the habit enough that I feel a void in my day if I didn’t do my #thankfulfor.

My #thankfulfors are varied from day-to-day.  Here are just a few things I have been thankful for:

  • Getting a new job.
  • New pen needles.
  • The whole family feeling healthy for a whole week.
  • Pink pens-I love pink!
  • The Diabetes Online Community (DOC)-you guys get me.
  • Family members getting to their destination safely.
  • Coffee.
  • That my arm is getting better after a Dexcom Rash.
  • Second cups of coffee.

I would go on but I’d end up being here all night.  I try to just keep it to one thing a day as more than that would pressure me to spend time I don’t really have.  A minute is all it took to write, “Today I am thankful for (fill in the blank.)”

Today is my birthday. So, today, I’m going to spend a little more than a minute.  There are so many things that I am thankful for, but to some them all up, I am thankful for another birthday.  I’m thankful for another day with my sexy husband and our beautifully creative, intelligent, and silly daughters.  I’m thankful for another day to be part of this Diabetes community.  I’m thankful that I get the opportunity to empathize and contribute in ways I never thought I’d could.  Lastly, for today, I’m thankful for diabetes reasearch which is why I am still here on this planet with you today.

My goal today, was to write for thirty minutes, and get back to blogging.  I’m pretty proud of myself for having 3 minutes to spare.  So, I guess I’m also thankful for goals. 

My second most memorable Long Beach Gran Prix!

In honor of this year’s Indy 500, I thought I’d finally post this blog I’ve been sitting on for 2 years!  This was the first Long beach Gran Prix I’d been to since I was diagnosed.  I’ve gone pretty much every year since 2003.  Here’s the post: 

I just had the most amazing weekend!

So, I’ve become quite the Indycar fan by association.  My husband was a huge fan when we met and he started going to the Long Beach Gran Prix 2000.  I started going shortly after in 2003.  Needless to say, I was very excited as it was my first race I attended since my diagnosis on June 28, 2012.  Going as a newly diagnosed T1D, you know I was there as a huge Charlie Kimball fan.  I was a fan of his before my diagnosis, but now it’s personal.

On Friday, we walked the pits, and I found Charlie Kimball’s pit box…so I had to get a picture while sporting my Super Duper Handy Dandy Novolog FlexPen!

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On Saturday, We went to the Indycar fan village where the Race with Insulin tent was up. There, I got to sign up for a chance to win a VIP trip for four to the final race of the year in Fontana, CA. After entering, I was able to sign this shell of Charlie’s car.  

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I love this guy.  I’m so happy, Ryan introduced me to this sport.

As I was there talking to the Novo Nordisk people, I told them that I was gonna come back for the Question and Answer Session with Charlie and have him sign my Novolog Flexpen. They told me that there would be a special line for Novolog Users and to see their marketing person to make sure I was in the right line!  Oh boy! Oh boy!

I was the only adult in the special VIP (Very Insulin-dependent Person) line that day!  I got to tell him my story of the fact that I had been diagnosed last year and that when they told me I had diabetes, I hoped I was prescribed Novolog so I can support Charlie even more!  The weekend I came home from the hospital after being diagnosed, Charlie drove to his first podium finish in Toronto.  He placed second.  I like to think he did for me.

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I had to make sure I took another picture after getting my Charlie swag!

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As always, it was a gret race day.  What made this one even better was at the end of the day, Ryan and I were able to sail away into the sunset with a great friend. 

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…And then this happened…about a month later!  I thought they skipped my part since they showed Charlie with all the kids that day but, nope, check for this Cut the BS Girl’s story at 13:14!

Some of you may be wondering what my most memorable Long Beach Gran Prix is.  It was in 2003 when I got engaged to the most amazing man after the race! I’ve been quite the fan ever since.  The only two Long Beach Gran Prix I’ve missed are the years we welcomed our daughters into the world.  

  

My Diabetes Personified

Go figure: Friday came along, I blinked, and Diabetes Blog Week was over.  I want to thank Karen Graffeo of www.bittersweetdiabetes.com for organizing this and bringing me back to blogging.  It really is something that I enjoy and I hope those of you who read Cut the BS…I mean Blood Sugar can tell.  

I was in the process of writing this post and I still would love to share it with you, so here it is:

Today’s post was supposed to be about food.  I’ve posted about food before and I will post about food again so I decided to write about one of the wildcard topics.  It asks me to personify my diabetes.  

As much as I’d like to call my Diabetes every horrible name in the book, I recall  referring to myself as a D-Toddler at the Diabetes unConference in Las Vegas this year.  The more I think about it the more  I find that is a better personification of my Diabetes.  For me, it’s like having an additional child.  

I’m a mother of two young women, both under the age of ten, and I find that in being a parent, my husband and I have to take the lead and make decisions for them.  I can’t expect my diabetes to take care of itself.  I have to keep a watchful eye on my diabetes, just like my girls.  It is my responsiblity if my girls hurt themselves because I did not set boudaries or check in with them soon enough.  It is my responsibility if one of my girls end up with her head between the stair railings or my blood sugars get too high and it is my responsibilty to get her head out of there or get my blood sugar back to a healthy range.  Luckily, no one’s ever gotten her head stuck between the railings at our house. 

Similarly to having a child, having diabetes takes some getting used to.  With time, I’ve gotten the hang of it and can roll with the punches.  Diabetes has it’s routines just like babies and toddlers have their routines and by the time I get used to the routines, the children and the diabetes change on me and I have to adapt.  There are fears and frustrations upon being a parent, but there are also little joys and victories like the first time all of us slept through the night or the times I make changes in my treatment and it happens to work.  Both have resulted in funky victory dance.

Differences?

The difference is my children will eventually grow up and make decisions of thier own based on their experiences in life.  My diabetes will always depend on me to make decisions to keep both of us in line.  I know that there are devices and surgical procedures in the works that might make decisions for me in the future, but my body will never correct itself or appologize when we are not in agreement.  My daughters and I have already corrected ourselvs and appologized to each other countless times in my tenure as a mother.  Diabetes will always be a part of me just like my girls are, but I will probably never love my Diabetes and I doubt that I will ever be proud of my Diabetes.  Needless to say, but I will, I very much love my girls and my husband and am very proud of every accomplishment they make along the way. 

My relationship with my diabetes has evolved, just like my relationship with my girls.  And through the years, it will continue to evolve.  But some things will always remain: I will always be Mom and I will always be a Person with Diabetes.

  

Click for the Diabetes Personified Wildcard Link List.

If you could personify your diabetes or that of your loved one, what would it be like?  What would it look like, what would it say, what kind of personality would it have?  Use your imagination and feel free to use images, drawings, words, music, etc. to describe it.  (Thank you Reva of Type ONEderful for this topic suggestion.)